The Busselton Population Medical Research Foundation (BPMRF) welcomes approaches from bona fide research workers for access to the accumulated data and biological materials and for participation in on-going and new data collection activities.
Applying for access
Investigators may apply for access to:
- information on survey subjects from the computerised database
- the accumulated biological materials (blood sera and DNA) on survey subjects in the specimen storage facility
- the survey subjects for the purpose of collecting additional information
- participation in new BPMRF data collection activities
Types of access
For applications limited to (1) and (2) above, data may be made available in the form of completed statistical analyses, data summaries such as cross-tabulations, or a de-identified unit-record data file. Biological materials may be made available in the form of sera or DNA specimens, or new analyses on stored specimens may be arranged in collaboration with BPMRF affiliated personnel.
For applications involving (3) above, name-identified data may be provided or arrangements will be made for BPMRF-affiliated personnel to collect the additional data on behalf of the investigators.
Applications involving (4) must be compatible with the on-going program of research activities and the responsible investigator is usually required to become a member of the BPMRF.
Applications must be in writing and in accordance with the guidelines. Lengthy submissions are not usually required. Data and biological materials will not be provided for approved projects until evidence is provided that the appropriate Instutional Ethics Committee (IEC) approval has been granted, and the responsible investigators have undertaken in writing to abide by stated conditions.
How to apply
All applications are considered by the Busselton Population Medical Research Foundation (BPMRF) Scientific Research Committee and, in general, access will be granted if:
- serious scientific research is proposed that is consistent with the overall program of research activities
- research proposed does not conflict with work in progress
- the applicant team includes a BPMRF-affiliated researcher
- the interests and personal privacy of survey subjects are protected and Institutional Ethics Committee approval has been given for the proposed research
- resources are available to pay the BPMRF and associated service providers for the data and materials and for the work to be done in making the data and biological materials available, and also for the further work proposed by the investigator
- the responsible investigator agrees to provide a copy of any additional data collected on survey subjects to the BPMRF for possible later use by other researchers
Access fees
There are two fees.
The first is paid to the UWA School of Population Health based on full-cost recovery for the programming and other costs associated with the planning, extraction and provision of the data.
The second is a contribution to the on-going storage, maintenance and other infrastructure costs of the Busselton Population Medical Research Foundation and is to be paid to the BPMRF.
The latter fee depends upon the type and amount of data and biological materials required, the association of the investi gators with the BPMRF program of activities, the intended use of the data, and whether the principal applicant is a postgraduate research student.
Investigators may, prior to submission of the formal application, submit a brief expression of interest and request preliminary investigation of the suitability of the available data and materials for their research aims.
University information
CRICOS Code: 00126G
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Last updated:
Friday, 11 December, 2009 2:02 PM