School of Population and Global Health

Research involving the community

A number of projects are currently involving consumers and community members in setting research priorities, policies and practices

These include:

View all completed research projects that actively involve consumers and the community here

Healthy Pregnancy Study

The Healthy Pregnancy Study established a reference group to provide input into the development of the survey and to help find pregnant women to be part of the study. The researcher reported that community involvement has improved the acceptability and credibility of the survey questions. Community input has also provided evidence of acceptability for ethics applications.

Methods of participation used: Reference group, commenting on documents

Find out more about the Healthy Pregnancy Study here

Beyond the Teaching Nursing Home

The Beyond the Teaching Nursing Home Project adopted a number of different methods to involve older adults in directing their research. A community forum was held to share the project plans and understand any concerns older adults may have about the project.

Subsequently a community reference group was established to provide feedback throughout the project. The community reference group were integral in designing a feedback process between older adults and students involved in the project. Two members of the reference group are members of the project advisory committee.

As the project has progressed community members from the reference group have delivered presentations with the researcher at conference.

 

Methods of participation used: Reference group, community consultations and forums, commenting on documents, steering group or panel

Find out more about beyond the Teaching Nursing Home Project here 

Centre for Health Services Research

The Centre for Health Services Research has involved the community in a number of completed projects and has also adopted a Centre wide commitment to actively involving consumers and the community in all stages of its research activities. A Community Expo was held in 2013.

The Expo enabled researchers to present, display and discuss their work with a wide range of community members. This has helped to build relationships between the two groups and resulted in a number of researchers being asked to present their work to community groups they had not currently

Following the Expo a Community Reference Group was established to:

  • provide a community perspective on all current and future research activities of the Centre
  • work in partnership with researchers to inform the community of research findings and outcomes

The reference group also provided community input into the development of the Centre’s strategic plan.

Methods of participation used: Community expo, reference group, commenting on documents,

Find out more about the Centre for Health Services Research here

Cardiovascular Research Group

The Cardiovascular Research Group has adopted the research buddy process. The Research Buddy has attended group meetings, presented to the group, reviewed and given feedback on grant applications. Researchers within the Cardiovascular Group are holding two community conversations in 2014 to seek consumer input into a new research project.

Methods of Participation Used: Grant application reviewers, research buddies, community consultations and forums

Find out more about the Cardiovascular Research Group here

Improving Rural Cancer Outcomes

The Improving Rural Cancer Outcomes Project has fully embraced consumer and community participation in all aspects of the project. The project team has included a consumer representative since the beginning of the project. A community forum was held with regional cancer patients and carers to identify gaps and missing themes in the research plan.

Three further community forums were held in different regional towns to gain feedback on a mock-up of the campaign that would be used in the study and suggestions of strategies to reach the target audience.

A steering committee was established, who along with the Cancer Council WA , helped researchers to adjust the information/consent forms to be easier to understand and more inviting to participants. This resulted in an increase in participants agreeing to be part of the project.

Non-government organisations have been used to administer the surveys and to promote the community campaign messages.

Methods of participation used: Consumer and community members on teams, community consultations and forums, consumer and/or community researchers, commenting on documents, steering group or panel

Find out more about the improving rural cancer outcomes project here

Centre of Excellence in Post-marketing Surveillance of Medicines and Devices

A consumer reference group meets three times a year to comment on priorities for upcoming work, interpretation of findings, and suggestions for dissemination of findings.

Methods of participation used: Steering group or panel

Find out more about the Centre of Excellence in Post-marketing Surveillance of Medicines and Devices project here


Endocrine Therapies for Early Breast Cancer: Health Outcomes and Policy Implications in Australian Clinical Practice

Consumers were consulted during the project planning phase, prior to seeking funding. Now that the project is funded and running a consumer advocate sits on the Project Advisory Committee. This committee meets annually to comment on priorities for upcoming work, interpret findings, and suggestions avenues for dissemination of findings.

 Methods of participation used: Consumer and community members on teams, community consultations and forums

Find out more about Endocrine Therapies for Early Breast Cancer: Health Outcomes and Policy Implications in Australian Clinical Practice here

Busselton Health Study

Community members can have a say about the Busselton Health Study in a variety of ways. Two community members sit on the governing Board of the project and have direct input into decision making similar to a project steering group. The study also has a Local Advisory Group (community reference group) which has input into developing project instruments. The project also adopts the community researchers method by asking ‘study volunteers’ to carry out certain aspects of data collection. Both the Local Advisory Group and the ‘study volunteers’ comment on reports and other documents.

 

Methods of participation: Steering group or panel, reference group, commenting on documents, Consumer and community members on teams

Find out more about the Busselton Health Study here

 

School of Population and Global Health

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Last updated:
Wednesday, 25 June, 2014 2:54 PM

http://www.sph.uwa.edu.au/2563477