School of Population and Global Health

Advocacy and advice

We advocate for increased consumer and community participation in research by:
  • promoting the benefits to researchers, consumers, community members, clinicians, policy makers, health administrators, non-government organisations and industry partners
  • supporting researchers to plan and implement participation activities
  • advising on the dissemination of research findings
  • supporting the translation of research findings into policy and practice

Advice

We provide support and advice on implementing participation activities to researchers and students at the School and the Telethon Kids Institute for individual projects. We also provide strategic level advice and planning for organisation-wide activities.

Consumer participation activities

Part of the support we offer to researchers is organising, promoting and facilitating consumer participation activities such as community conversations and forums. Our methods of participation page here, shows how consumers and community members can be involved in research.

You can find information about new events on the Involving People in Research website here

Examples of forums that we have previously held can be found on our Involving People in Research website here

Consultancy

We offer consultancy to national and international organisations wanting to embed consumer and community participation into their research processes. Examples of this include:

  • Health Information Research Unit, Swansea University, UK
  • National Breast Cancer Foundation, Australia
  • SA-NT Datalink, Australia (South Australian and Northern Territory data linkage consortium)

Resources

We have developed a number of resources to support the planning and implementation of consumer and community participation in research.

All of our resources can be accessed freely on our Involving People in Research website here

Resources include:

The Green Book

McKenzie A, Hanley B, Consumer and Community Participation in Health and Medical Research, A practical guide for health and medical research organisations 2007, Perth; The University of Western Australia and the Telethon Institute for Child Health Research

Fact Sheet Series

McKenzie A, Haines H. Consumer and Community Participation Fact Sheet Series, 2011, Perth; The University of Western Australia and the Telethon Institute for Child Health Research

Membership on committees

Our staff are members of a range of key state, national and international committees to ensure consumer and community participation is considered early in the decision making process. These committees include:

  • The National Health and Medical Research Council’s Community and Consumer Advisory committee
  • The National Prescribing Service Consumer Advisory Committee
  • The Department of Health and Ageing Medical Services Advisory Committee Protocol Sub-committee
  • The National Health and Medical Research Council Consumer Participation Statement Working Committee
  • The Therapeutic Goods Administration Labelling and Packaging Review External Reference Group
  • The University Of Western Australia Faculty of Medicine and Dentistry Faculty Selection Committee

Presentations

We have received numerous invitations to give presentations to a variety of local, national and international audiences including:

  • The Institute for Health Research, Notre Dame University Fremantle, 2013
  • Advocacy and Activism University of Canberra ACT March 2013
  • INVOLVE Conference: putting people first in research Nottingham UK, 2012
  • WA department of health clinical senate forum Perth, 2012
  • Swansea University Health Information Research Unit Community Forum, 2012
  • National Health and Medical Research Council’s Public Consultation Workshop: Draft Statement on Consumer and Community Participation in Research, 2012
  • Equipping Parents and Clinicians as Partners in Perinatal Trials; Towards a National Network Sydney, 2012
  • Shenyang University Hospital Workshop, Shenyang China, 2010

Responses to public consultations

Part of our advocacy role is submitting responses to public consultations on topics around health and medical research. Submissions to date include:

  • Strategic Review of Health and Medical Research Consultation Response, October 2012
  • Therapeutic Goods Administration Medicines Labelling and Packaging Review, August 2012
  • The Health Consumers Council of WA Community Forum Report: Prescription Medicines Costs, School of Population Health The University of Western Australia, October 2011
 

School of Population and Global Health

This Page

Last updated:
Wednesday, 25 June, 2014 10:29 AM

http://www.sph.uwa.edu.au/2554791